nfed.org The NFED seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes.
andy.org.mxThe andy fund. The story of a brave boy born with a primary immune deficiency caused by a mutation on the nemo gene. Story of his hospitalizations and constant battle against infeccions, support from his family and friends including fund raising efforts
ectodermaldysplasia.orgThe Ectodermal Dysplasia Society is a charity dedicated to improving the health and wellbeing of people whose lives are affected by Ectodermal Dysplasia (ED).