nfed.org The NFED seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes.
andy.org.mxThe andy fund. The story of a brave boy born with a primary immune deficiency caused by a mutation on the nemo gene. Story of his hospitalizations and constant battle against infeccions, support from his family and friends including fund raising efforts
nailpatella.orgThe homepage of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with NPS.
fop-ev.deFörderverein für Fibrodysplasia Ossificans Progressiva - Erkrankte
ectodermaldysplasia.orgThe Ectodermal Dysplasia Society is a charity dedicated to improving the health and wellbeing of people whose lives are affected by Ectodermal Dysplasia (ED).